Hi, New here -- my story/symptoms
Posted: Wed Mar 04, 2015 11:36 am
Hi everyone,
I've been reading this site for a few weeks and decided to join. Looking for advice, support, similar stories.
I'm a 33yo female with recurring Iritis. It all started in 2010 after I had my first child. My body sort of went crazy that year. I had my first Iritis flare in my left eye in July of that year. It was pretty bad since I had no clue what was going on I didn't get into the eye doctor till it was excruciating. Was put on Prednisolone drops immediately and the inflammation went down slowly. The whole episode took about 6 weeks.
Then in November 2010 I noticed symptoms again in my left eye. Went right back to the doc and it was a mild flare up. Treated with Pred drops and it lasted a few weeks.
After that they ran a lot of blood work. Came back HLA B27 positive but no other issues or conditions. The only other thing that had been going on that same year was a very awful UTI infection shortly after I gave birth to my son and symptoms never subsided. Ended up with chronic bladder inflammation and irritation for almost a year. Those symptoms subsided but do flare every once and a while, mostly because of diet reasons.
So after the second flare of Iritis things calmed down and were good for about 5 years, even through the pregnancy and birth of my second child. Fast-forward to 2015 and out of nowhere I got an awful Iritis flare in my right eye this time. This started end of January and I'm still tapering down drops. It was mild when I first went in, was put on Pred drops 4x daily but it went from mild to absolutely awful in about three days after starting drops. Went back in and was put on Pred drops every hour and dilating drops. Was on that for 9 days with no change. No worse, no better. Was then switched to Durezol and was on that every 2 hours for four days until I saw a Uveitis specialist. At my next appt all inflammation was gone -- seriously amazed at what Durezol can do!!! Then started tapering drops and now two weeks later I'm at Durezol 2x a day though I have major blurry vision in my right eye still. I'm very concerned about that. I'm guessing it's from the Durezol but it's pretty bad so I'm a bit worried.
And now just this week I'm noticing some issues with my left eye. Having dull aching pain and light sensitivity. Going into triage at my eye center today to figure out what's going on. Also being referred to a rheumatologist for further testing though I have no symptoms of other related conditions. No other family with similar issues but my sister has Type 1 Diabetes.
So that's me and what I'm dealing with. Luckily I am now seeing the top Uveitis specialists in my state at an eye speciality center so I am confident in their care. I'm just ready to get my eyes back to normal. Thanks for reading!
-Alison
I've been reading this site for a few weeks and decided to join. Looking for advice, support, similar stories.
I'm a 33yo female with recurring Iritis. It all started in 2010 after I had my first child. My body sort of went crazy that year. I had my first Iritis flare in my left eye in July of that year. It was pretty bad since I had no clue what was going on I didn't get into the eye doctor till it was excruciating. Was put on Prednisolone drops immediately and the inflammation went down slowly. The whole episode took about 6 weeks.
Then in November 2010 I noticed symptoms again in my left eye. Went right back to the doc and it was a mild flare up. Treated with Pred drops and it lasted a few weeks.
After that they ran a lot of blood work. Came back HLA B27 positive but no other issues or conditions. The only other thing that had been going on that same year was a very awful UTI infection shortly after I gave birth to my son and symptoms never subsided. Ended up with chronic bladder inflammation and irritation for almost a year. Those symptoms subsided but do flare every once and a while, mostly because of diet reasons.
So after the second flare of Iritis things calmed down and were good for about 5 years, even through the pregnancy and birth of my second child. Fast-forward to 2015 and out of nowhere I got an awful Iritis flare in my right eye this time. This started end of January and I'm still tapering down drops. It was mild when I first went in, was put on Pred drops 4x daily but it went from mild to absolutely awful in about three days after starting drops. Went back in and was put on Pred drops every hour and dilating drops. Was on that for 9 days with no change. No worse, no better. Was then switched to Durezol and was on that every 2 hours for four days until I saw a Uveitis specialist. At my next appt all inflammation was gone -- seriously amazed at what Durezol can do!!! Then started tapering drops and now two weeks later I'm at Durezol 2x a day though I have major blurry vision in my right eye still. I'm very concerned about that. I'm guessing it's from the Durezol but it's pretty bad so I'm a bit worried.
And now just this week I'm noticing some issues with my left eye. Having dull aching pain and light sensitivity. Going into triage at my eye center today to figure out what's going on. Also being referred to a rheumatologist for further testing though I have no symptoms of other related conditions. No other family with similar issues but my sister has Type 1 Diabetes.
So that's me and what I'm dealing with. Luckily I am now seeing the top Uveitis specialists in my state at an eye speciality center so I am confident in their care. I'm just ready to get my eyes back to normal. Thanks for reading!
-Alison