AShley Thomson, Autoimmune retinopathy in a child

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Mike Bartolatz
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AShley Thomson, Autoimmune retinopathy in a child

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by athompson2209 on Sat Sep 19, 2009 11:53 am

My 8 year old son was diagnosed with autoimmune inner ear disease two years ago and juvenile idiopathic arthritis last November. We have been seeing opthomologist every 6 months. This last visit he had a significant acuity change and the doctor thought we should just keep an eye on it. We went to the Eye Foundation Hospital in Birmingham for a second opinion and the Dr. said he would perform an ERG to ease my mind and to get a baseline. We had the ERG on Tuesday and the results were abnormal. I was in such shock I didn't get the specifics, only that there was a problem with his rods and that it could possibly be AIR. Had labs drawn and sent to Oregon. He currently receives infusions of IVIG & solumedrol every 6 weeks for his hearing loss, and also a shot of methotrexate 1 x week. I see that several postings have had confirmed diagnosis of AIR- how long did it take to get your test results and what tests did they perform to get your diagnosis. Thank you so much! Ashleyathompson2209

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Edit postDelete postReport this postInformationReply with quoteRe: Autoimmune Retinopathy AIR
by Mike Bartolatz on Sat Sep 19, 2009 8:12 pm

if you are in Birmingham Alabama, USA, please contact Dr Russel Read. he is an EXCELLENT ocular immunologist. he is at the University of Alabama Birmingham. he can employ cutting edge diagnostic and treatment methods for all forms of ocular inflammatory disease processes.
his contact information can be found at in the patient information section of the site on the SPECIALIST list.
the specialist with the most experience with childhood causes of Ocular inflammatory disease processes here in the USA is Dr C Stephen Foster MD in Cambridge MA. Dr Foster is with Harvard Medical school and MERSI where he practices as well as the Founder of the Ocular Immunology and Uveitis Foundation, the above link will take you to his website and there is an ASK DR FOSTER Forum that you can ask this question of him.
we have a parent's forum that I am going to link this post to.

Wish you the very best,
MikeMike Bartolatz
Mike Bartolatz
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