My 2 month old son has a Posterior Synechiae

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Tony
Posts: 3
Joined: Wed Aug 08, 2007 6:23 pm

My 2 month old son has a Posterior Synechiae

Post by Tony »

My son is 10 weeks old tomorrow, but since he was 1 month old we have noticed he had an irregular right pupil. So we brought it to the attention of our pediatrician at his 2 month visit. He referred us to an ophthalmologist. So we went to the appointment yesterday to find out that our son has a Posterior Synechiae in his right eye along with a small off centered cataract.
The doctor gave a list of 50 things that could have caused it and said we will have to wait and see it there will be any vision issues. She check his eye for any inflammation and said there were no signs of any.
So I have been trying to get any information of causes, treatment,and so on. My wife and I are worried for our son. Can this happed in utero? How many infants have this with no really cause? Is it treatable?

Any help and information would be appreciated?

Tony
Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Post by Mike Bartolatz »

Dear Tony,
I am feeling your devastation at learning of this in your infant child. I don't know the answer to your question and have emailed a friend for guidance who is an Ocular immunologist.
you might consider contacting Narsiing A Rao at Dohenney Eye Institute in LA or perhaps DR Albert Vitlale in Salt Lake City. I don't know if they deal with inflammatory eye disease in infants or chldren. I do know that DR C Stephen Foster in CAmbridge MA is the BEST ocular immunologist in the World and he Could help in the diagnosis and treatment of any cause of inflammatory eye disease in all age groups. he manages MANY childhood uveitis and other inflammatory diseases for people from around the world some of whom travel from the west coast of the USA. Renee' our Parent's forum moderator is from Depoe bay, Oregon and takes her daughter to see Dr Foster for treatment.

Hopefully we can get back to you with some information soon, In the interim please know that I'll try to help you in any way I possibly can/

I encourage you to join the following support group for parents of kids with Ocular Inflammatory disease processes:
http://www.uosg.org
there is a specialist list that has the contact informaton for the above named specialists at http://www.uveitis.org in the PATIENT INFORMATION SECTION OF THE SITE .
Renee' is a facilitator at the above PARENTS forum at http://www.uosg.org
I help with the 'learning about ocular inflammatory Disease and getting to a specialist forum there as well as moderate all forums here and at http://www.parsplanitis.org

your plight as a parent of a child with OID is why I moderate several forums. if there is any sign of possible inflammation in a small child, the better the specialist involved the better the long term outcome from my experience doing online support group for over 8 years now. I have to commend you for taking the initiative to seek out information and to get the best care for you child.

God Bless,
Mike
PS: I have a two year old grandson and thinking of what I would do iif I were in your shoes and your situation has broken me up a bit. I had to calm down a bit and then edit my post to you. MSB
Mike Bartolatz
Moderator
rtaunton
Posts: 40
Joined: Fri Jul 09, 2004 7:53 pm

Tony

Post by rtaunton »

I echo Mike's concerns and supportive words. I think it is amazing that you and your wife caught this so early and brought this to the attention of the pediatrician. The best advice I can tell you is to find a specialist who knows how to treat this. I am anxious to see what Dr. Foster has to say. You found two wonderful men (Mike and Dr. Foster) to help steer you in the right direction to find the answers that you are looking for.

Please let us know what you learn. Give your baby and wife a hug from me, Don't give up, you came to the right place,

Renee'
Renee'
Oregon
Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Tony

Post by Mike Bartolatz »

"Examination of the child, probably under anesthesia, with blood draw for analytic studies, would be the appropriate path."

although there are over 85 different causes of uveitis, looking for thing that MIGHT be transmitted intrautarine to the fetus might be the guiding thing here but there are other causes, genetic predisposition to inflammatory eye disease that might be tested for as well. Toxoplasmosis, toxocardia, Valley Fever, come to mind. other causes in small children might also be looked into such as Juvenile Ideopathic Arthritis. other thing such as West Nile Virus if cases have been seen in your area might also be appropriate.

Wishing you the very best,
Mike
Mike Bartolatz
Moderator
Tony
Posts: 3
Joined: Wed Aug 08, 2007 6:23 pm

our son...

Post by Tony »

Thank you to all who responded to my husband's posting regarding our sweet little boy. Being first time parents, this caught us by total surprise. My husband just shared this website and all of your postings with me.....what can I say? THANK YOU to those that responded with your advice and most importantly, support. We will definitely be looking into the doctors that you recommended. I, or my husband, will post what we find out. Thank you again for your support and encouragement...it means so much to us.

Tony and Julie (and Jake too!)
Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Post by Mike Bartolatz »

Julie,
Welcome to the group (and baby Jake too)!
We are here to help you through this. another specialist in San Francisco is DR Ira Wong.
I can't keep straight where places are in your beautiful State.

Please know that we will try to answer any questions that you may develop, nothing is too trivial to ask. remember that you are NOT ALONE!

Wishing you the very best,
Mike

PS: my grandson's name is Jacob msb
Mike Bartolatz
Moderator
Tony
Posts: 3
Joined: Wed Aug 08, 2007 6:23 pm

Update

Post by Tony »

I wanted to get back to you and keep everyone up to date with our son Jake's condition. Mike, from your advice we contacted Dr. Foster through his website. He refered us to Dr. Fredricks out of UCSF which is very close to us. My wife called up the hospital trying to get an appointment with Dr. Fredricks. After talking with the secretary my wife found out he just took a position at Stanford. The secretary said that she was a good friend of the Dr. and would see if she could get us in to see him at. Within a half hour the phone rang, it was Dr. Fredricks office saying they could get Jake in the next day.

So we went to Stanford and saw Dr. Fredricks. He told us that Jake had a Posterior Synechiae that was a genetic abnormality. He explaind how it developed in weeks 10-11 of development when the eye was forming. It was not due to inflamation. He said he would never call this a cataract. He also mentioned that we need about 30% of our lense to see and Jake had 85-90%.

So it was all good news. Dr. Fredricks was amazing how he explained everything. He actually allowed my wife and I to look at Jake's iris through his lighted lense. What a diiference a doctors bedside manner makes.

He does want to keep an eye on Jake's eye, every few months.

I justed wanted to thank everyone on this forum for all of your support and advice. And a special thanks to Mike and Renee. We could have gotten Jake such great care if it wasn't for you. My wife and I both felt lost in this sea of information until we spoke to you guys. Thanks again.

Tony, Julie, and Jake
Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Post by Mike Bartolatz »

Tony,
thank you so much for the update about your son. it heartens me that Dr Foster was able to find a qualified pediatric opthalmologist for you to see there in the SF area, Idon't know if his contact information is available on Dr Foster's list and will check. Perhaps you could post full contact information for Him so that I can add it to MY list here at iritis.org as well as other forums that I moderate so that we can suggest him QUICKLY to parents in situations like yours.

I Will also send Dr Foster a copy of your post here as I know he likes feedbacik about things like this.

Keep in touch please updating from time the development of your precious child.

God Bless,
Mike Bartolatz
Mike Bartolatz
Moderator
rtaunton
Posts: 40
Joined: Fri Jul 09, 2004 7:53 pm

; )

Post by rtaunton »

Tony, Julie and Jake

{{{{{HUGS}}}}}} I can hear your relief! Getting expert care is key, and that is exactly what you did. You searched, You asked, and You went out there and got it done! Thank you so much for giving an update. Jake is so lucky to have you both. I've been thinking about your family a lot, and your post has warmed my heart.

We're here for you, and please keep us informed now and again.
We'll never forget Jake ;)

Renee'
Renee'
Oregon
lmzysk
Posts: 1
Joined: Wed Nov 02, 2016 9:24 pm

Re: My 2 month old son has a Posterior Synechiae

Post by lmzysk »

Just wondering if everything still ok with your child's vision? We just got diagnosed my son just turned one and everything I have read is terrifying and your post is the only story I have found that is identical to my sons. Please reply at your earliest convenience. Tia!
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