Autoimmune diseases narrowing down

Post here with questions about other autoimmune diseases or conditions.

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Vbar2205
Posts: 6
Joined: Tue Jul 10, 2018 2:40 pm

Autoimmune diseases narrowing down

Post by Vbar2205 » Wed Jul 11, 2018 1:55 pm

Hi,I have been struggling with Bi-Lateral Uveitis for 6 years. Having about one episode per year. Complications: cataracts, hypopian filling bottom chamber of iris, retinopathy, and permanent posterior synechaie (my pupil is shaped like Mickey mouse’s head at the top of my Iris when fully dilated-been this way for 4 years. I always have big balls of light in my peripheral arc’ing down. Right now, I have been flared up for 8 months! Treatment is Predforte 6 times daily and Atropine as much as I can. Past treatments were injections which worked! But he wont do one now. Anyhow, I cannot see well at all in my Left eye. I also have been recently diagnosed with Graves Disease. And now my hip is beginning to fail me! I am 34 yrs old. My gp sent me for Xrays and bloodwork. Waiting on results. I am HLA-B27 positive. My hip seems to pain me and it cracks alot. My OP thinks it could be Ankylosing Spondilitis. But I have no back pain. My Gp thinks rheumatoid. I got blooded tested for ANA, ESR, Rheumatoid, Potassium and Creatinine and CBC. Do you think these tests will say anything?

m_rajatish
Posts: 6
Joined: Sat Apr 28, 2018 2:27 pm

Re: Autoimmune diseases narrowing down

Post by m_rajatish » Wed Jul 18, 2018 9:39 am

Have you tried non steroidal therapy? If you haven't, it might be the best way to move forward.

Disclaimer: I am not a doctor, a fellow sufferer but believe this disease can be managed only if you are able to work with specialized doctors

Vbar2205
Posts: 6
Joined: Tue Jul 10, 2018 2:40 pm

Re: Autoimmune diseases narrowing down

Post by Vbar2205 » Thu Jul 19, 2018 8:08 am

What do you mean by non-steroidal therapy? Like NSAIDs? Yeah, I depend on them daily. Now, I am getting Ptosis. Its awful.

Valerie

m_rajatish
Posts: 6
Joined: Sat Apr 28, 2018 2:27 pm

Re: Autoimmune diseases narrowing down

Post by m_rajatish » Sat Jul 21, 2018 12:39 am

I am talking about DMARDs such as Methotrexate or Biologics such as Humira. Its really important to visit an Iritis specialist - there are fortunately quite a few. Where are you located?

Vbar2205
Posts: 6
Joined: Tue Jul 10, 2018 2:40 pm

Re: Autoimmune diseases narrowing down

Post by Vbar2205 » Sat Jul 21, 2018 2:59 pm

I am located in Yarmouth, Nova Scotia, Canada.

Vbar2205
Posts: 6
Joined: Tue Jul 10, 2018 2:40 pm

Re: Autoimmune diseases narrowing down

Post by Vbar2205 » Tue Jul 24, 2018 4:55 am

So, I had an emergency visit to my optho Sunday after having blindness in my left eye everytime I stood up. He is sending me to a glaucoma specialist/surgeon.
I guess I now have angle-closure glaucoma, ripened cataracts and inflammation. Pressure was 30 in my bad eye, 13 in the good eye. Pupil went from looking like Mikey Mouse’s head to now a cat eye (pupil is oblong and narrow). The glaucoma surgeon is 3 hours away and waiting list is 4 years. My optho is going to be putting in a urgent request.

Vbar2205
Posts: 6
Joined: Tue Jul 10, 2018 2:40 pm

Re: Autoimmune diseases narrowing down

Post by Vbar2205 » Sun Aug 05, 2018 12:32 pm

Went to a glaucoma specialist and it wasn’t glaucoma. It was Iris Bombe and my pupil is touching my cornea and my iris is bowed out. Got a quick laser to allow aqueous humour to flow.

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