pars planitis and another autoimmune disease?

Post here with questions about other autoimmune diseases or conditions.

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Mike Bartolatz
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Bell's palsy - causes

Post by Mike Bartolatz » Fri Oct 23, 2009 10:14 am

http:/ALL OF THE CONDITIONS LISTED ALSO HAVE UVEITIS AS A POSSIBLE COMPONENT
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http://www.google.com/search?hhttp://ww ... f&oq=&aqi=

Bell's palsey and sarcoidosis

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Bell's palsy in MS
http://www.mult-sclerosis.org/Bellspalsy.html
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http://www.webmd.com/brain/tc/bells-pal ... c-overview
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Bell's palsy and Lyme disease
http://www.thehumansideoflyme.net/viewa ... php?aid=62
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Bell's palsey in SLE and Sjogren's syndrome
Bell's /www.google.com/search?hl=en&source=hp&q ... f&oq=&aqi=
Mike Bartolatz
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Blondienbrunnette
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Re: pars planitis and another autoimmune disease?

Post by Blondienbrunnette » Fri Oct 23, 2009 10:33 am

Bells Palsy-The disorder has also been associated with influenza or a flu-like illness, headaches, chronic middle ear infection, high blood pressure, diabetes, sarcoidosis, tumors, Lyme disease, and trauma such as skull fracture or facial injury.

Since he had some congestions in his cheest and FATIGUE, I bet he had the flu since it was going around which in returned caused the face to start drooping.

Blondienbrunnette
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Re: pars planitis and another autoimmune disease?

Post by Blondienbrunnette » Fri Oct 23, 2009 10:52 am

If it does come back, then it is rare. I wonder what would be causing his bells palsy..all seems weird when his mother had ms and now his son has symptoms like ms (not to say it is still waiting on results)

Also, another symptom he gets his this swelling in his chest. I think its lymph nodes that get so swollen, its hard to swollow food sometimes??! Maybe another clue.

Mike Bartolatz
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Re: pars planitis and another autoimmune disease?

Post by Mike Bartolatz » Fri Oct 23, 2009 12:01 pm

That can occur in SLE and Sjogren's syndrome as well as MS if I recall correctly.
any swollen lymph nodes should get checked out by a doctor as Lymphoma can cause it and it can mimick pars planitis as a neoplastic syndrome/ocular lymphoma. a biopsy of tissue inside the eye would be needed to rule this out.

mike
Mike Bartolatz
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Mike Bartolatz
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Re: pars planitis and another autoimmune disease?

Post by Mike Bartolatz » Fri Oct 23, 2009 12:02 pm

Thyroid disease can cause bell's palsey. please read articles above.

mike
Mike Bartolatz
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Blondienbrunnette
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Re: pars planitis and another autoimmune disease?

Post by Blondienbrunnette » Mon Oct 26, 2009 12:18 pm

Hey mike, hope your doing well! I was going to run to our local walmart and was hoping they would have the supplments you suggested..the vit d calcium and mag, right?! Hope that will help some. He is Atleast his pain level has went up to a 7 in a few days, thats good news.

Hopefully the dr office will call us tomorrow with the mri results....

Mike Bartolatz
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Re: pars planitis and another autoimmune disease?

Post by Mike Bartolatz » Mon Oct 26, 2009 3:04 pm

it has to be Cholecalciferol, Vitamin D3 along with Magnesium to get the right combination that the body can absorb. this is IF he is low on Vitamin D3. there are other forms of Vitamin D but the body can't use them.

Walmart should have something equivilent to the above combination. he should take at least 2000 units a day. the Costco one is Calcium Citrate with Vitamin D3, Magnesium and zinc. it has calcium combined with the D3 as ' cholecalcepherol'.

run this all by his doctor as he can't take it if he is high in vit D.

I hope his pain goes down too. 7 is one heck of allot of pain!

mike
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Blondienbrunnette
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Re: pars planitis and another autoimmune disease?

Post by Blondienbrunnette » Mon Oct 26, 2009 4:16 pm

Ok went to walmart and got Vit d3 High Potency 1000 IU,Mag 250 mg, Calcium 600 mg..I guess thats a start until we see his doctor again. I asked the pharmicist if those were ok and he said yes. So I have been reading on "spasticity" it says its caused by Cerebral Palsy,anoxxic encephalpathy, injury from car wreck or gun sho wound,stroke, infection and MS...Well ms fits everything for his situation...His pain level has gotten up to a 7 with his legs. Thats when he can barely walk..and those are his REALLY bad days. He hasnt gotten up to that in a few days. Lately its been staying at 3-4 burning sensations...Today its at a 5.

Thanks for all the info..read it after I went to walmart. but this is a start..

Mike Bartolatz
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Re: pars planitis and another autoimmune disease?

Post by Mike Bartolatz » Mon Oct 26, 2009 5:08 pm

Vitamin D3 may help with MS like symptoms as it is the level is often low in MS patients.
the magnesium can also help with muscle cramping if it isn't neurological. potasium should also be checked. I eat bananas for potasium.

I get contractions in my hands and my legs. I have to physically open my hands and fingers some days. typing responses can be very difficult (like today). I have a worse time trying to write with a pen. my hand just stops in the middle of my signature and then it will cramp up.
my entire body will get a spasm when on the computer, twisting my torso and neck.


I hope his pain level goes down soon,
Mike
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Blondienbrunnette
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Re: pars planitis and another autoimmune disease?

Post by Blondienbrunnette » Tue Oct 27, 2009 5:57 am

So mike, what exactly are you diagnosed with??

Thanks for all the info and support, it has REALLY helped!!!

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Re: pars planitis and another autoimmune disease?

Post by Blondienbrunnette » Thu Oct 29, 2009 10:48 am

MRI results finally in......everything was negative...BUTTTT they only did the mri of his lumbar spine!!! I'm tired of this..he needs a specialist so they will know what TEST to do and do it RIGHT!!!!

Noone around us understand. Here I am 23 years old trying to deal with this with noooo insight from anyone else because its too complicated for people that dont read about it.

I am getting ready to just get on the phone and call allll neuro nearby and tell them whats up and what has been tested for. Our insurnace company doesnt need a referral.

Mike Bartolatz
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Re: pars planitis and another autoimmune disease?

Post by Mike Bartolatz » Thu Oct 29, 2009 3:03 pm

did you make the uveitis specialist appointment in Ok City?
He will understand and can diagnose and treat.
it might be vascular rather than neurological etc.
the possible connection to epstein Barr virus could explain some of this since he had that prior to getting the Pars planitis.

mike
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Blondienbrunnette
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Re: pars planitis and another autoimmune disease?

Post by Blondienbrunnette » Sat Oct 31, 2009 9:34 am

Ok, so my husband has an appointement with the same doctor on monday. Obvisouly he is not getting any better, so we are going to DEMAND a referral. This is way too complicated for a reg pcp to handle. Because when he does the tests he doesnt order them right and it just costs us extra money and time!! He should have ordered the spinal mri with the WHOLE spine not just the lumbar region...

Because most lesions in ms are in the cervial spine and thoratic spine. I will let you know what happens. I had him call my husband in some baclofen, the other night he just took one 20 mg and that helped some but not a whole lot, last night he took 2...we will see when he wakes up if that helped some...

Mike Bartolatz
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Re: pars planitis and another autoimmune disease?

Post by Mike Bartolatz » Sat Oct 31, 2009 11:31 am

I thought you didn't need a referal with your 'insurance'. call the specialist in Oklahoma City that I provided contact information on and MAKE the appointment.
he has done fellowship level training in Ocular inflammatory disease. then ask him to suggest a neurologist in Oklahoma worth a damn. it is HIGHLY unlikely that your local neurologists will know anything about this stuff so don't waste time and money locally.

mike
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Blondienbrunnette
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Re: pars planitis and another autoimmune disease?

Post by Blondienbrunnette » Sun Nov 01, 2009 8:13 am

That is EXACTLY what I tried to explain to my husband the other night when I presented him with information on ms. So he could understand a little better what types of tests he needs done. OKC is about 3-4 hours away. My husbands HATES to make dr appointments a "big deal"....But I told him it would save us money and time and the specialist would know EXACTLY what they were doing. I told him just because you finally get into a neuro doesnt mean they will know what the hell they are doing!!!!! Ms (if that is what he has, WAYYYY too many risk factors for it) is VERY complicated and unless you specialize in it, you dont have a damn clue.


There is a ms clinic in OKC with a neuro/opthomoligst there...I was telling him about it...he doesnt want to make the drive!!!!

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