Eye Pain

Post here to exchange iritis general information and support with others.

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radlynmendoza
Posts: 13
Joined: Tue Aug 20, 2013 4:29 pm

Re: Eye Pain

Post by radlynmendoza » Wed Sep 11, 2013 9:09 pm

Mike, do you recommend anyone on the Cleveland, Ohio list or Durham, NC. My in-laws live near Cleveland. Durham is about 3 hrs away from me.

New development: dull, pounding noise in my left ear when I blink or close my eye. This evening, I had some pretty good temple pain. I've never had headaches so maybe is is what a headache feels like. It is only on one side of my head. Could it be from all the blurred vision? I am pretty much in front of a computer all day.

(ok, mike, just read your replies to some old posts, and I see that the headaches can be related to lots of things).

Has anyone tried wearing a patch on the eye that is blurred? Or does that just mess stuff up even more?

Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Re: Eye Pain

Post by Mike Bartolatz » Thu Sep 12, 2013 8:37 am

how about Columbus Ohio? DR Dino Klisovic who is trained by Dr Foster at Harvard is located there. contact information at http://www.uveitis.org In the patient information section of the site. DR Glen Jaffe is at Duke in NC.

hope this helps,
Mike
Mike Bartolatz
Moderator

1elizabeth
Posts: 5
Joined: Mon Sep 02, 2013 10:03 am

Re: Eye Pain

Post by 1elizabeth » Tue Sep 17, 2013 7:44 pm

Hello all :) Tomorrow I will be starting Humira injections ( bi weekly.) I am really excited! Obviously the Embril hasn't been working for me at all. It's been almost two weeks since I got an injection of steroids under my eye. Most of the "floaters" are gone. Still sensitive to light and blurry vision in my left eye... ( might be due to still taking drops of Durezol and Cyclogyl) not sure? ...
Mike, I was wondering if you know about how long the Humira should work with clearing up the Uvitis? ** With all hopes that it does ** I also started taking Lutin (vitamin) Maybe it will protect my eyes? Hope everyone is doing well :D Thank you, Deb

Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Re: Eye Pain

Post by Mike Bartolatz » Sat Sep 21, 2013 6:54 pm

hi, the druezol will take several weeks to start working if it will work for you. great you got off of the Enbrel which is useless for uveitis of any kind.

the dilating drop is what is causing the major blurriness too so when it gets out of your system in a few days that should go away somewhat and it may return to normal in about a month. the lutein will help protect the retina but won't help with uveitis.

mike
Mike Bartolatz
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1elizabeth
Posts: 5
Joined: Mon Sep 02, 2013 10:03 am

Re: Eye Pain

Post by 1elizabeth » Mon Sep 23, 2013 9:00 pm

Thank you Mike :) You are very helpful.
I had a great visit last Friday with my eye Dr. He said my eye looked 1000 times better than the last time I saw him! He said he can see straight to my retina this time ( last time he couldn't) and wants me to continue with my drops for three more weeks and then to have another check up. I am hoping to taper off of the drops and I will be cleared up of this Uvitis. My pupil is still a funny shape, kind of oblong... Does that ever return to normal?

Ps. My R.A. doctor told me that my Uvitis has no relation to me having an autoimmune disease... ?? My eye doctor knew this. I don't understand? Thanks :)

Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Re: Eye Pain

Post by Mike Bartolatz » Tue Sep 24, 2013 10:57 am

The general statement that uveitis is not related to autoimmune disease is inaccurate. many autoimmune conditions are directly linked to uveitis as are many inflammatory conditions and pathogens. there are over 90 different things that cause uveitis to occur. some are linked to genetics from cancers to arthritic conditions. although rheumatoid arthritis occurs no more frequently in uveitis patients than the general population, it might be that you have another autoimmune disease that might show it's ugly head in the future as often autoimmune diseases occur together as occurs In Multiple Autoimmune Disease, MAD, undifferentiated connective tissue disease, or diseases that impact multiple organ systems such as Sarcoidosis, systemic Lupus erythematosus, Sjogren's syndrome, systemic Sclerosis etc.

pathogens such as LYME disease, Tuberculosis, syphilis, chlamydia, valley fever, toxoplasmosis, toxocara catis or canis, histoplasmosis etc. I strongly urge you to get an ocular Immunologist involved in your care. these specialists are aware of the need to treat posterior uveitis systemically as it is frequently linked to various conditions. the inability of your ophthalmologist to be able to see the retina clearly suggests posterior segment involvement not just iritis present.
a list of specialists can be found at http://www.uveitis.org in the 'about the support group' section of the site.

wish you the very best,
Mike
Mike Bartolatz
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Diggy Smalls
Posts: 2
Joined: Mon Jun 05, 2017 8:41 am

Re: Eye Pain

Post by Diggy Smalls » Sat Jun 10, 2017 3:11 pm

radlynmendoza wrote:For those wondering about the kenalog injection, it does hurt a lot a couple of hours after the shot and about a day after. Putting drops in after the injection is also very painful. I also had a little bubble on my eye where the injection went in. Every time I turned my eye, the bubble would push out and actually protrude out of the eye. It was only cool because I got to show my kids how gross it looked. Otherwise, I worried about it. The bump is gone now thankfully and that was about 2 days after the injection. So don't worry about the bump if you get it, it will go away.
OH MY GOODNESS!! I had a shot in my eye to get the inflammation down, and it did this, too. It totally freaked me out. It felt so so strange! I could feel the pin prick where the needle went in when I would put in the drops. I looked like a junky! It helped a ton, though. And yeah, it was a little freaky but not too bad. Fun story to tell! Haha

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