Iritis.org

AddyIris,
Seems like it would be fine to me. I personally welcome any place for support and information and would never confine myself to only one place anyways. Hope all doing well.

Good news, then you are in good hands already and lucky to live so close by! Best wishes.

sorry meant other thread (not site)

Hi AddyIris,
I posted my response at the other site!
Ann

Hi AddyIris, Sorry that you are having these types of symptoms. In my opinion once you are in the realm of uveitis/iritis or possibly AIR, then it is best to get a second opinion from an ophthalmologist trained in ocular immunology as all 3 have the potential to be blinding conditions. After I got m...

Luiz, Not sure about that link I just posted as just found another and they seem to feel Fulton's theories not accurate... http://www.migraine-aura.com/content/e27891/e27265/e42285/e42442/e42443/index_en.html There is this discussion at a blog connection at Mayo Clinic (respected hospital US site) o...

Hi All, Thought I would post an update. Happy and scared to report that we are stopping rituximab infusions (cyclophosphamide had already been stopped) as my visual tests have indicated improvement, but those darn retinal antibodies are still present. So hoping that I will remain stable. Subjectivel...

Hi everyone, Matilda, cheers and high fives are in order in celebration of your stabilization. This is one of all of our dreams and so glad that it is happening for you. I do hope the neuropathy and fatigue is addressed very soon or improves. I returned from another visit with my specialist undergoi...

Hi Brittany, Frustrating as I had a nice reply and must have hit wrong key twice! Sorry about your diagnosis and your vision problems. Mike gave good advice to ask Dr. Foster. I am not a doctor but do have Autoimmune Retinopathy (AIR). It is my understanding from my readings that there is a genetic ...

Mike, happy to support this site since you all do so much for the rest of us. Hopefully our postings all help support each other with information and encouragement.
Take care all.
Ann

These are nasty eye disease(s) and it seems that each case is slightly different which I suppose matches the fact that we are all different? So far for me it is attacking my central vision and it seems for many posting here it attacks their peripheral vision. Liz, very glad to see you posting and I ...

Hi All, Thought I would update everyone. After a long battle I received 8 weekly infusions of Rituxan with few issues except for slight fatigue. Thankfully I received these in my hometown as travel to Boston this past two months weekly would have been impossible on a weekly basis! The cyclophosphami...

Hi All, It was so wonderful to meet Matilda, absolutely amazing that we managed to pull it off! Our world is truly small and I hope our paths cross again someday. It would be wonderful to meet everyone at this site someday. Not much to report so far, I am doing well on a low dose of Cyclophosphamide...

Matilda,
Meeting up would be great. Hopefully you got my email and will send another one later tonight with details of how we can maybe pull this off!
Thanks, Mike, for teaching us slow folks how to use the site:)
Take care all.
Ann

Joe,
I hope this new treatment helps you out. I am keeping my fingers crossed for all of us.
Ann