AddyIris,
Seems like it would be fine to me. I personally welcome any place for support and information and would never confine myself to only one place anyways. Hope all doing well.
Search found 28 matches
- Fri Oct 14, 2016 10:28 pm
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
- Mon Apr 18, 2016 9:24 pm
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
Re: Autoimmune Retinopathy AIR
Good news, then you are in good hands already and lucky to live so close by! Best wishes.
- Mon Apr 18, 2016 12:25 pm
- Forum: General Discussion
- Topic: Question about AIR
- Replies: 2
- Views: 5355
Re: Question about AIR
sorry meant other thread (not site)
- Mon Apr 18, 2016 12:25 pm
- Forum: General Discussion
- Topic: Question about AIR
- Replies: 2
- Views: 5355
Re: Question about AIR
Hi AddyIris,
I posted my response at the other site!
Ann
I posted my response at the other site!
Ann
- Mon Apr 18, 2016 12:24 pm
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
Re: Autoimmune Retinopathy AIR
Hi AddyIris, Sorry that you are having these types of symptoms. In my opinion once you are in the realm of uveitis/iritis or possibly AIR, then it is best to get a second opinion from an ophthalmologist trained in ocular immunology as all 3 have the potential to be blinding conditions. After I got m...
- Tue Feb 02, 2016 10:26 am
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
Re: Autoimmune Retinopathy AIR
Luiz, Not sure about that link I just posted as just found another and they seem to feel Fulton's theories not accurate... http://www.migraine-aura.com/content/e27891/e27265/e42285/e42442/e42443/index_en.html There is this discussion at a blog connection at Mayo Clinic (respected hospital US site) o...
- Tue Feb 02, 2016 9:57 am
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
Re: Autoimmune Retinopathy AIR
Hi All, Thought I would post an update. Happy and scared to report that we are stopping rituximab infusions (cyclophosphamide had already been stopped) as my visual tests have indicated improvement, but those darn retinal antibodies are still present. So hoping that I will remain stable. Subjectivel...
- Wed Sep 23, 2015 12:12 am
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
Re: Autoimmune Retinopathy AIR
Hi everyone, Matilda, cheers and high fives are in order in celebration of your stabilization. This is one of all of our dreams and so glad that it is happening for you. I do hope the neuropathy and fatigue is addressed very soon or improves. I returned from another visit with my specialist undergoi...
- Sat Jul 25, 2015 1:25 am
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
Re: Autoimmune Retinopathy AIR
Hi Brittany, Frustrating as I had a nice reply and must have hit wrong key twice! Sorry about your diagnosis and your vision problems. Mike gave good advice to ask Dr. Foster. I am not a doctor but do have Autoimmune Retinopathy (AIR). It is my understanding from my readings that there is a genetic ...
- Thu Apr 09, 2015 12:16 pm
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
Re: Autoimmune Retinopathy AIR
Mike, happy to support this site since you all do so much for the rest of us. Hopefully our postings all help support each other with information and encouragement.
Take care all.
Ann
Take care all.
Ann
- Tue Apr 07, 2015 5:24 pm
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
Re: Autoimmune Retinopathy AIR
These are nasty eye disease(s) and it seems that each case is slightly different which I suppose matches the fact that we are all different? So far for me it is attacking my central vision and it seems for many posting here it attacks their peripheral vision. Liz, very glad to see you posting and I ...
- Sun Mar 08, 2015 11:23 am
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
Re: Autoimmune Retinopathy AIR
Hi All, Thought I would update everyone. After a long battle I received 8 weekly infusions of Rituxan with few issues except for slight fatigue. Thankfully I received these in my hometown as travel to Boston this past two months weekly would have been impossible on a weekly basis! The cyclophosphami...
- Sat Dec 13, 2014 2:54 pm
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
Re: Autoimmune Retinopathy AIR
Hi All, It was so wonderful to meet Matilda, absolutely amazing that we managed to pull it off! Our world is truly small and I hope our paths cross again someday. It would be wonderful to meet everyone at this site someday. Not much to report so far, I am doing well on a low dose of Cyclophosphamide...
- Wed Nov 26, 2014 3:30 pm
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
Re: Autoimmune Retinopathy AIR
Matilda,
Meeting up would be great. Hopefully you got my email and will send another one later tonight with details of how we can maybe pull this off!
Thanks, Mike, for teaching us slow folks how to use the site:)
Take care all.
Ann
Meeting up would be great. Hopefully you got my email and will send another one later tonight with details of how we can maybe pull this off!
Thanks, Mike, for teaching us slow folks how to use the site:)
Take care all.
Ann
- Mon Nov 24, 2014 10:12 am
- Forum: Related Conditions
- Topic: Autoimmune Retinopathy AIR
- Replies: 342
- Views: 481667
Re: Autoimmune Retinopathy AIR
Joe,
I hope this new treatment helps you out. I am keeping my fingers crossed for all of us.
Ann
I hope this new treatment helps you out. I am keeping my fingers crossed for all of us.
Ann