Search found 3 matches

by schizinsky
Fri Apr 03, 2009 3:21 pm
Forum: Parents' Forum
Topic: INTRODUCE YOURSELF
Replies: 22
Views: 45641

Re: INTRODUCE YOURSELF

Thanks for explaining about the Orphan Drugs. I will find out next time we see Dr. Foster (or before) what steps we should take with the insurance company. The story about your fevers was very interesting. When Liza had ADEM, we had a devil of a time even getting a diagnosis; she was only hospitaliz...
by schizinsky
Fri Apr 03, 2009 1:47 pm
Forum: Parents' Forum
Topic: INTRODUCE YOURSELF
Replies: 22
Views: 45641

Re: INTRODUCE YOURSELF

Thanks, Mike. We have been very happy with Dr. Foster. The situation is just so draining, and my daughter has been through so much. I'm not familiar with the Orphan Drug list; I looked into a bit, but it's not yet clear to me how it would apply. I'll have to do more research. Thanks for the welcome ...
by schizinsky
Fri Apr 03, 2009 12:37 pm
Forum: Parents' Forum
Topic: INTRODUCE YOURSELF
Replies: 22
Views: 45641

Re: INTRODUCE YOURSELF

Hi, my name is Sandy. My 16-year-old daughter, Eliza, was diagnosed with anterior idiopathic uveitis almost exactly four years ago. With the exception of a brain inflammation (acute disseminated encephalomyelitis) that occurred in the summer of 2005 (and that no one has been able to link to the uvei...