First time Questions for others

Post here to exchange iritis general information and support with others.

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Anthony
Posts: 25
Joined: Thu Dec 20, 2007 7:07 am

First time Questions for others

Post by Anthony »

Hello and Merry Christmas to all.

As I stated this is my first time with any serious illness and I want to make sure this gets treated right as I am supposed to deploy to Afganistan in 6 weeks for 7 months.

About 4 weeks ago I woke up with a very red right eye,light sensitive,and some eye musle pain. The Opthamologist said it was iritis and gave me Dialating drops,predistolone drops and maxi cream for night. At this point my vision went right to heck for the last 4 weeks going from 20/15 to 20/40 in my right eye which sadly was my good eye the left being 20/60 so I have felt blind for a month.

My vision seems to be clearing and is around 20/25 the doctor has reduced me to the Pred every other hour and says the inflammation is currently gone so wane of the drops.

My question is that when I wake up in the morning my right eye is very bloodshot and seems to improve through the day never reaching normal though . My doctor was dismissive but since I am in the military I go where I am sent and he has been right so far it seems.

So I was wondering if it is normal for it to be so bloodshot especially when I move the eyelid and look at the top and bottom of my eye?As well my vision is quite clear for a hour or two when I wake up then fades to about 20/25 as well I get some double vision around lights at night.

Sorry if this rambles like I said I do not get sick till now ;( but with a deployment to a 3rd world country I need this better as I do not need the added stress and frankly for a bit there a felt like I was going blind hopefully it continues to improve this red eye just worries me that it will break right out again as soon as I stop the meds.

Thamks for all the information on this form.
Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Post by Mike Bartolatz »

Hello Anthony and welcome to the group

your vision was blurred by a combination of inflammation and the medications used to treat your inflammation. the dilating drop causes the most by the way and it will take a couple of weeks for it to totally get out of your system.
the redness from uveitis starts adjacent to the iris and moves outward. conjunctivitis does just he oposite, starting at the corners of the eye with the most redness and proceeds toward the iris.
Scleritis can occur along with iritis/anterior uveitis. only an opthalmologist can tell you why your eyes are red but it is common with active inflammation from iritis.
this will go away as will most of the aversion to light once the eye is totally healed.

usually you can't go to a combat zone with uveitis. that would put you in a very bad position visually and mentally puting you and your squad memberrs at risk. treatment isn't available either as they don't have slit lamps and opthalmologists to monitor your uveitis. I was in the USAF when I came down with this and was returned to the USA from assignment to Turkey for example, a non combatant position.

Why is you r one eye at 20/60? do you have a history of uveitis in that eye as well which caused this drop in vision?

do you mean Halo's around lights at night? if it is white light that might indicate the beginning of a cataract forming from the inflammation or from the eyedrops. if it is a 'rainbow' like effect, that can indicate that the pressure inside your eye isgoing up, glaucoma and you need to see the opthalmologist right away. the flashes of light are also indicative of problems that the opthalmologist needs to look at as it sometimes indicates the membrane that encapsulates the Vitreous is trying to detach and this can result in a tear with bleeding inside the eye.

to ween off of the drops, one reduces it very slowly or the uveitis can re emerge and you will have to start the process over again. the are tapered one drop a day for a WEEK at a time until you are down to one drop a day, then that is tapered as well with every other day for a week and then perhaps every two days for a week and then stopping,

Wish you the very best,
Merry Christmas.
Mike
Mike Bartolatz
Moderator
Anthony
Posts: 25
Joined: Thu Dec 20, 2007 7:07 am

Post by Anthony »

Hi Mike thanks wel the left eye has been bad since childhood and with my right eye being 20/15 is very strong normally its never been a issue I do not even own glasses,although after this little incident think I may get a consult with Lasik Md just for the left eye as being half blind for the month was horrible and very depressing when your job is all about physical fitness .

As for the deployment well no one seems very concerned here in Edmonton and I do not want to raise a stink unless it does not go away hopefully it goes away in 6-8weeks like the doctor says as that gives me a month before deployment . I am no longer in the infantry(9 years was enough thankyou lol) and I want to go do my part but I do not want to be a burden on the team I am used to bringing the team up not down.

As for the bloodshot eye it seems to be from the outside in so my hope is that it is a irritant from the drops as all other symptoms of iritis were gone in the first week except for that big vision loss. The Vision loss seems to be improving most would be happy with 20/25 as for the double vision its only at night on certain types of lights like a road green light in the distance is doubled till about 40 feet away as I said the doctor seemed to think it was all a matter of course and my eye pressure has been between 12-16 the 3 times they checked it..

Your site is very helpful I am trying every home remedy on it from the refresh tears, taking omega 3's,warm towel over the eyes,taking advil and I may even sacrifice a chicken I have never felt helplees like this in my whole life I pray it keeps improving weekly as it has been.

I will keep it updated on the condition as it is helpful to know your not alone once again I appreciate the advice and this forum the last month
Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Post by Mike Bartolatz »

Are you in Edmonton, Alberta, CAnada?
there are a couple of excellent doctors there who have experience with Uveitis.

DR Kerinni (sp) comes to mind. we have a list of doctors On a CANADIAN DOCTORS LIST that has him listed.

you could have conjunctivitis secondary to uveitis. get back to the opthalmologist for evaluation as corticosteroid eyedrops make the surface of the eye a place where bacteria and viruses can mulitply quite easily. an antibiotic might be needed to stop the severe red eye.

did you have uveitis as a child? an expert might be able to tell if this is the case. have you been tested for the HLA B27 gene?

FORGET getting Lasik, it is not advised for uveitis patients at all. it is trauma which is the second leading cause of uveitis and it is difficult to control from trauma. cataract surgery is trauma to the eye as well and if you develop cataracts later on, you will have to wait until your vision is 20/80 or worse before a reputable doctor will operate. I had to wait until I was to the 20/200 level because both eyes were +4 cells. then they both flared from the IOL implantation.

Lasik has a couple of other problems, it leads to severe dry eyes in about 20-30% of individuals who have it done. it is NOT a fun thing to have to live with. you need as much fluid on the surface of your eyes as possible and if you went to Afghanistan it would be a very dusty situatiion. without tear film to clear the eye, you couldn't see.

the surgery also cuts nerves so if you got something into your eye you wouldn't know it and that could lead to infection and perhaps loss of the cornea especially if in a war zone.

Wish you the best,
Mike
Mike Bartolatz
Moderator
kingfisher610
Posts: 72
Joined: Tue Aug 14, 2007 1:35 pm

Wow, another CF memeber with Iritis

Post by kingfisher610 »

Hi Anthony

Sorry to read about your bout with Iritis, I know how troubleing it can be. I too am in the CF (navy) and I have been wrestling with this condition since march. I have had one serious case, and a seccond minnor case about six weeks later that most likely was the first case reoccuring. However, I have been free of it now for going on seven months. The medical condition is serious enough, but the impact on my carear and life as a result of the CFs policy makes matters worse. I am really surprised that they are letting you deploy. I should have left with my vessel for the Gulf in November but I have been medically landed now for a year and my case is bound to go to ottowa to be reviewed for release. They really seem to treat this condition leporsy and do very little about it other then perscribe the eye drops. In my case the however it was in both eyes, I guess that makes it more severe in thier opinion. Hopefully you fare better! Were in a unique position, having the condition is bad enough, without having to weigh the effects on our livelyhood


Best of luck

Steve
just want my life back
Anthony
Posts: 25
Joined: Thu Dec 20, 2007 7:07 am

Post by Anthony »

After 5 weeks the right eye vision has returned although it still gets red when I sleep overnight so I do not feel it is gone at least vision has returned I will continue with 4 drops a day.

Sadly after 5 weeks I was just diagnosed with it in my left eye after it started hurting out of the blue,so back to square one there hopefully it does not return to my right eye. I have more ammo now to get tests ran at least.

What really sucks is I have spent the last year training and working for this tour and now I have to go to the MIR to try to get off as I cannot deploy like this even if I they want me to I want to go but am a liability like this.I have 10 years of service so hopefully the just will not try to release me I figure likely a temporary category for 6 months to a year then a revaluation.

I have no real idea if a would get a medical pension or not I have never been sick and have always been in great shape so do not now the medical system at all. I do not mean to be personal but how long have you been in and why are the threating release usually you get t-cat first and can come off if the cause is gone?I ask because this really applies to my livelihood and do not want me and my family homeless as frankly I currently have no other job skills in a civilian workplace for the same money.

Thanks for any help
Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Post by Mike Bartolatz »

The main thing to concern yourself with right now is to figure out why this is happening. get them to do some tests now like the HLA B27 allele test to see if you will continue to get this from now on. NSAIDS might help stop the recurrent nature of this if it is related to the HLA B27 gene, adding some oral nsaids to stop inflammation elsewhere in your body might also help stop it in your eyes, then you can wean off the steroid eyedrops. if not, DMARD drugs like Methotrexate can be used or other things as well. you will have to fight for this as most clinics don't know how to do this. there is a Canadian Doctors list that you can go to for specialists.

wish you the best,
Mike
Mike Bartolatz
Moderator
kingfisher610
Posts: 72
Joined: Tue Aug 14, 2007 1:35 pm

Hi Anthony

Post by kingfisher610 »

Buddy do I ever hear you!

I spent the last year sailing crappy shake down sails for this big deployment, dreading it and at the same time yearning to get it done. I had my self pysched up for it, had the money from the trip spent in my mind and had a list of hot spots I wanted to hit while away. Then bam, out of nowhere I get hit with this. Boom trip over, and the doc onboard is telling me brace for release. I have only been in now for a few years, so this would have been my first major deployment. As for medical release, I have no idea what that would mean to us. What I have heard is, two years salary at 75% wages and they will pay up to 5000 a year for you to go to school at the same time. I dont know about you, but I am 33, have a wife and son. A Mortgage to pay, hopes of having another kiddo, and dreams of a family vaccation to make up for the fact that I have been away18 months out of the last 24. I really do not relish the thought of going back to school or trying to live on 25% less of my salary. In my Situation, the doctor left it up to me, to go straight for a pcat or get two tcats and then have it go for review. As I understand it, if you go for a Pcat it willl go to ottowa faster and they will make a decision on what to do. Having family responsibities, I opted for the two tcats because it buys more time . When i return from Christmas leave, I visit my Gp, and he will likely put me on my seccond Tcat, then in six months, it goes to Ottowa, and I wait. All in all the not knowing is worse then the condition. I practically have to force the doctors to do any investegation and my gp has allready told me he is simply building a file and that Ottowa will make the decision. I spend allot of time, reading this site chasing down leads and harrassing my gp to have test done. I really feel I have to. Like you, I was normally very heatlhy, and they cannot find any reason for this. My advice to you is get as much help as you can from Personnel as high up as you can. Do lots of research, get tested for everything and look into your family history for clues. Please keep me up to date on your struggel as I feel were unique in this situation and what works for me (at least regulation wise) might work for you and vise versa. I don't know you personally but I can imagine what must be going thru you mind cause Im living it too.


Trully, best wishes for you and yours

Steve

Ps, if your in Edmonton, must be a PPCLI?
just want my life back
Anthony
Posts: 25
Joined: Thu Dec 20, 2007 7:07 am

Post by Anthony »

I will keep you posted I am no longer in the Infantry I remustered last year to a non combat trade. Like I said currently I have to go and convince them I cannot deploy I want to go but I want to go blind less and the side effects from the drops and the disease really make me a liability overseas and put my health at risk ,funny thing is my opthamologist says I can go just keep taking drops like thats healthy for 7 months so I have to go question that and try to get all these tests especially where after almost 6 weeks it suddenly hit my left eye and my right eye looks scary when I wake up although you mentioned you eye did that to ?.

For you where it is currently gone why go on that second t-cat as the doctor cannot prove you have it. It is scary stuff especially since the treatment causes so many problems over time. As for me well who knows hope for the best for now.

Thanks for listening Anthony
kingfisher610
Posts: 72
Joined: Tue Aug 14, 2007 1:35 pm

Hey Anthony

Post by kingfisher610 »

Yeah my eyes get red from time to time as well. For a while they were looking really evil, but they seem ok now. They often feel dry, and god knows I have experemented with every type of eye drops out there. If you go to the MIR they will give you thera tears for free as often as needed. For me, having tried almost everything I find the tear gel works the best but you will have to pay for these out of pocket. However it is worth it. Though, I have stopped using the drops so much. Only on rare occasions will I reach for it now. I find soaking a face cloth in warm water and applying a compress to my eyes periodically does the job for me. I take special care to do so in the morning, with my shower. In my case, they say that they worry about the chance that i may have another episode at sea. I am a NESOP, which is a hard sea trade. The only eye symtom I have had lately is a muscle spasm in my left eye. Its really annoying and seems to come and go but does not really affect my vission. Ironically I have had glasses for years and went to get my Every two year eye check up at the the MIR and they told me that my vision was perfect and that I did not require glasses! Go figure, yet I cant sail. I have a feeling my troubles might be related to hypothroidism as it runs in my family. four blood relavtives have it. Will get tested in the new year. Think that might explain my dry eyes, muscle twitches and pains. At least that would be a good outcome, as its treatable. We will see.


I know its hard not to worry, cause I sure do, but try not to drive yourself crazy looking in the mirror.

Best wishes
Steve
just want my life back
Anthony
Posts: 25
Joined: Thu Dec 20, 2007 7:07 am

Post by Anthony »

ARGGHHHH.......... sorry back from the Opthamologist today and got the bad news that my left eye went from trace on Thursday to a 3 today so have to up the predforte to ever hour again and hope it works. On the Upside the right eye was still clear and vision is good although it aches and gets bloodshot the doc did not seem concerned be 2 drops a day soon for the right god I hope it stays clear and this all goes away.

Sorry if this post rambles I have never been so stressed and worried about something my whole life.

It is not looking good for me going overseas hopefully there are no big career reprucussions I am not a specialty trade so can be employed elsewhere sucks though as it feels like the whole last year was a waste if I do not go. I feel this is the Army's fault I had about 8 different immunizations 7 weeks ago and 2 days later Bam this all hits after 34 years of perfect health.All the Opthamologists have said its not outside the realm of possibility is there any research on this ?

I have gone for a bunch of blood tests and have to schedule some x-rays the ways my head has been hurting I feel like a MRI to .

I have an appointment with a specialist in 2 weeks he was not on your list but I gave my doctor the names on your list and he said none of them were actual specialists. He gave me and appointment with a Stanley M.Chan and said he was the the only actual Uveitis specialist in Edmonton.

Again sorry for the long post but it was eigher type or cry and thats not becoming for a 34 year old army guy ttyl. I will update with new info as I get it maybe it will help someone somday.
Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Post by Mike Bartolatz »

anthony,
I contacted a friend of miine there in Alberta who runs the uveitis support group. to try to find out more about this so called 'expert' Dr Chan. here is her response:

"
"MIKE HE CAN ALSO CONTACT THE OFFICE OF DAVE HANCOCK OUR ALBERTA HEALTH MINISTER AND REQUEST TO SEE DR.KHERANI. Note that the Alberta Provincial has given a grant to operate the UVeitis Clinic that runs monthly at the RockyView in Calgary Alberta for that purpose. Many come from out of town for treatment and proper diagnosis due to having a team ...eye and rhuematologist for proper care.

Take Care
Let me know if this helps Mike...and HAPPY NEW YEAR TO YOU TOO!!!

Saletta"

This shows who IS the specialist there in Alberta. do as she sasys and contact Dave Hancock's office for assistance in getting this squared away.

Wishing you the very best,
Mike Bartolatz
oldefart@hotmail.com

if you will send me your personal contact information, I'll give you Slatetta's email address so that she can help you out.
Mike Bartolatz
Moderator
Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Post by Mike Bartolatz »

Anthony,
I have sent you a personal message Click on PRIVATE MESSAGES
in the headerline above to read it.

it is a forward from Saletta there in Calgary which has attachements that I can provide to you once you send me your email address.

Wish you the best,
Mike
Mike Bartolatz
Moderator
Anthony
Posts: 25
Joined: Thu Dec 20, 2007 7:07 am

Post by Anthony »

Hi Mike thanks for the info I will keep that name in mind I am not ready yet to kick up a huge fuss although if this does not resolve itself in the next month I will ask .

My Opthamologist does not seem horrible or out to get me, just not really concerned as I am sure my case is fairly mild compared what he is used to seeing but he did refer me to a specialist and has ordered a bunch of tests so I will let it play out for now it is just hard to wait when it's your eyes and reading about the damage these Pred Forte drops can eventually do is scary . I have had the pressure taken 6 times in 7 weeks always between 10-15 and was told I was a non responder hopefully that does not change .

Thank you again and I will definatly keep everyone posted I think my biggest enemy has been depression I have to start exercising again I went from 5 days a week down to 2-3 the last 6 weeks.

TTYL Anthony
Mike Bartolatz
Posts: 6595
Joined: Fri Feb 06, 2004 9:58 pm

Post by Mike Bartolatz »

Your doctor Chan is NOT an uveitis expert.
you have +3 cells which is A LOT of inflammation. you need an EXPERT not just some retina specialst or other wanna be uveitis doctor. the term EXPERT is used too freely in the medical community and by patients. a true specialist has done fellowship level training in the diagnosis and treatment of uveitis, a ONE YEAR commitment beyond the opthalmology field.
you need more than just topical steroids to stop this ping pong uveitis that you have going on. you need testing for common things like the HLA B27 gene and to rule out possible viruses, bacteria and other pathogens seen with this stuff.
in the past 8 years I have interacted with hundreds of people from Canada and probably 50 from Alberta, you wil have to see someone on the list I provided to you in order to prevent long term loss of vision.

mike
Mike Bartolatz
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