Multifocal choroiditis

[Hudsongrl]

Are there any other people here with this diagnosis that have had a decent outcome? I was diagnosed Nov. 23 rd, placed on oral steroids and durezol and eyes have been quiet since dec. 28 th. Weaning from 40 mg. prednidone to 6 mg today. Going doen now by 1 mg. each week.

Have been fortunate as all my vision returned 20/20 both eyes. I am seeing one of the revommended ocular immunologists. Have had field visual testing and OCT and things look good. But, I am terrified at what lies ahead. My doc says if i flare next step is cellcept. I am 60 years old. Had the whole blood work up and chest x ray. All negative. I do have psoriasis and Hashi thyroid. I was in great health and am now consumed with anxiety. I know this is a very serious condition and feel helpless.

Anyone have anything encouraging to say? I am petrified.

[Banjo karen]

Hi, I would like to introduce myself. I am karen and I live in Manchester UK, I have just been diagnosed as having Iritis last weekend and I can agree with you that it is very scary not knowing what the future holds. I had never heard of this condition up until last weekend and I wasn't informed of the seriousness of the condition. I don't know if you have read the book called, Living with Uveitis: A complete guide to Uveitis and Iritis. I have just read this book and it has been very informative and given a lot of information about different eye condition. I have also become aware through reading the book that your diet can have a big impact on your symptoms. I empathise with how you are feeling but the only advice i can give you which i've had to give myself is to try not to worry too much about all the information available as it can become overwhelming and scare you more. You mention that you are seeing a specialist. Did you get in touch with one of the specialists from the list that is on this forum? Take care.

[Hudsongrl]

Yes, i am seeing a specialist from the list...ocular immunologist. My eyes are currently quiet, but i am still very worried.

This group is helpful, but pretty silent at times...and that makes me feel alone. Sometimes, i think I have read TOO much and need to stop. information is good, but can amp up anxiety too.

[Keegan]

You're not alone! Just trust your docs, and never ignore it. I always took my vision for granted until a started having symptoms. There's so many causes that it can take years to identify what's triggering it. Sometimes (like in my case) you never find out. I've been pretty happy with my current eye doc, and I've seen 4 of them and a neurologist as well. The never ending cycle I live in has caused me great life pain. But just stay positive!

[Hudsongrl]

Thank you Keegan. I am trying to go one day at a time. Working on minimizing stress. What type iritis do you have?

[Keegan]

Currently Idiopathic Pars Planitis with macular edema left eye only, but I've had pretty much every type (left eye only) even optic neuritis since my first symptom in November 2012. Had to have cataract surgery 2 years ago due to prolonged steroid use. Probably have surgery for macular edema later this year. I've done every test known to man, all negative.

[Hudsongrl]

So sorry to hear this:( mine is both eyes, but thankfully quiet at the moment. Hang in there.

[Keegan]

Thank you! Hang in there too. I guess you can say I've gotten use to it, but it's taken its toll. Things are looking up for me though. Getting my depression treated finally.