Kidney Stones and Swollen Feet. Anyone Else?

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Kidney Stones and Swollen Feet. Anyone Else?

Postby mtbargeman » Tue Mar 23, 2010 11:49 pm

Hi, Everybody!

As many of you know, I just had a bout with kidney stones. I passed both stones this weekend, without needing any surgery or lithotripsy. YAAAAAAAYY!!! Right? Right! Here's my problem. My feet and ankles are so swollen I cannot put my shoes on. My feet are not quite double their normal size (looks GROSS!) and it really, really hurts. I have an appointment with my PCP in the morning, because my feet have been like this since Friday. I called Monday about it, and by the time anyone got back to me, I had to make the appointment for tomorrow, to make sure I was home when the kids got in from school. Sucks for air when you are incapable of driving yourself around. Grrrr... Another good reason to get to a specialist in OID as soon as possible when diagnosed with any form of Uveitis. I used to be able to drive with the most mediocre of them... I miss cars... Oh well. :roll:

I don't have flank pain anymore, and everything else seems fine. Obviously, it isn't fine, or I'd be able to get my boots on. Or at least a pair of sneakers. Instead, I'm stuck with a pair of ballerina-type house shoes, and the elastic around the top digs into me. I am considering going barefooted to the Doc's, but I don't think they let you in anywhere but the ER when you're barefoot... This is really strange, even for me. Has anyone else ever had this problem???

Mary
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Re: Kidney Stones and Swollen Feet. Anyone Else?

Postby mtbargeman » Sun Mar 28, 2010 12:49 am

HI, ALl.

Well today my feet were finally back down to their normal size. No one knows the reason why my feet swelled that way. PCP is baffled, was supposed to call back, but never did. Urologist refused to see me- said it had to do with circulation, not my kidneys, even tho I didn't have it til the stones passed. Heart rate and pulse normal, B/P normal, breathing sounds normal. No one has a clue, and apparently they dont don't care. No tests run, no questions asked, no new knowledge gained. I think I need to find a new GP. I get sick of trying to find folks who give a crap about people who have Medicare. Medicare is a farce. To top it all off,My Part D insurance is insisting I join their stupid mail order pharmacy. I don't like it.

I have to go 50 miles one wy to see my eye guy Monday. Haven't seen him in over a year. At least I'll make it this time. I had to reschedule something like two weeks ago. I think Monday makes two weeks. Boy, sometimes I feel like giving up and just refusing to see a Dr. at all. Ugh.

I'm just sick of everything right now.

Mary
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Re: Kidney Stones and Swollen Feet. Anyone Else?

Postby Mike Bartolatz » Mon Mar 29, 2010 10:29 am

I feel for you Mary! I know that allot of people with autoimmune disease such as Sarcoidosis, Lupus, RA etc complain that their feet/ankles swell up and that it is very painful and that it is related to circulatory problems in their extremeties. did they take your pulses in them? you might ask about getting tests done for you heart.
have you been tested for clotting factors, amyloidosis etc?

Good luck with your eye appointment,
Mike
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Re: Kidney Stones and Swollen Feet. Anyone Else?

Postby mtbargeman » Tue Mar 30, 2010 12:32 am

HI, MIke!

No, no one took pulses in my feet, though there was some poking and prodding. I will ask about tests on my heart next time I see the doc. I finally got back into shoes after a week. Went to the eye guy- and hour and twenty minute ride one way, and my feet were starting to swell again. I need to have that checked. Thanks for the info.

Mary
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Re: Kidney Stones and Swollen Feet. Anyone Else?

Postby Mike Bartolatz » Tue Mar 30, 2010 10:49 am

often the antibody markers for things like Systemic Lupus erythematosus and Sjogren's syndrome take years to appear so you might asked to be tested for them, SSA (anti RO52) SSB (anti LA) and the Smith clotting factor related to SLE might be looked into. If I recall correctly you were diagnosed with Rheumatoid Arthritis and many different connective tissue diseases can produce antibodies. do you have severe dry mouth too? if so a lip biopsy to look for Sjogren's related mouth stuff as well as a different type of inflammation related to Sarcoidosis could be checked for through Biopsy.
with Sarcoidosis, the first presenting symptoms can be optic neuritis, Tinnitus, lacrimal gland inflammation and neovascularization of the retina and uveitis and arthritis of the extremities.
Sarcoidosis occurs in about 16 % of pars planitis patients, 6% of MS patients, then Behcet's disease, Lyme disease, toxocara canis or catis, Lyme disease, and very rarely epstein barr and catscratch disease.

Wish you the very best my friend,
Mike
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