Search found 6 matches

by Joe gargano
Mon Nov 17, 2014 3:59 pm
Forum: Related Conditions
Topic: Autoimmune Retinopathy AIR
Replies: 342
Views: 482253

Re: Autoimmune Retinopathy AIR

Hi Mike, Ann, Matilda and all the folks using this wonderful forum for information and help. Since my last post it's been back and forth to the doctors, still trying to get this AIR stable. I had spoken with Dr Rao in August about seeing Dr Heckenlively , he said that would be very wise. I called Dr...
by Joe gargano
Thu Jun 19, 2014 1:48 pm
Forum: Related Conditions
Topic: Autoimmune Retinopathy AIR
Replies: 342
Views: 482253

Re: Autoimmune Retinopathy AIR

Hi Ann - Thank you for sharing your experience, I'm learning a ton of information which I plan to share with my doctor on my next visit. It seems like steroids and injections are my doctor's preference, I have to push for the other alternatives. I hope your vision is doing better and best wishes, Joe
by Joe gargano
Fri Jun 13, 2014 8:56 pm
Forum: Related Conditions
Topic: Autoimmune Retinopathy AIR
Replies: 342
Views: 482253

Re: Autoimmune Retinopathy AIR

Thanks again Mike, I will check with Dr Rao first, if he wants to proceed with the steroids, I will ask to get a second opinion from Dr Foster or Dr Heckenlively. I think Dr Rao has been trying to stay away from stronger class of drugs to take it easy on my body. I would rather get off the steroids ...
by Joe gargano
Thu Jun 12, 2014 8:33 pm
Forum: Related Conditions
Topic: Autoimmune Retinopathy AIR
Replies: 342
Views: 482253

Re: Autoimmune Retinopathy AIR

Hi Mike - I have heard Dr Rao is the best in the world when it comes to treating inflammatory eye diseases. However, he has told me he has only had a couple of patients with AIR. Things were going very well after the Retisert implants, my vision was very good, I was doing everything has normal. Thin...
by Joe gargano
Thu Jun 12, 2014 1:02 pm
Forum: Related Conditions
Topic: Autoimmune Retinopathy AIR
Replies: 342
Views: 482253

Re: Autoimmune Retinopathy AIR

Hi Mike, Thank you for the advice, I would really like to try another alternative to the steroid. I will ask about both Rituxan and the IVIG drugs. When we did the Infliximab/Remicade infusions, my rhuematologist suggested this instead of the Rituxan. After the 4th infusion, my body really started t...
by Joe gargano
Wed Jun 11, 2014 8:00 pm
Forum: Related Conditions
Topic: Autoimmune Retinopathy AIR
Replies: 342
Views: 482253

Re: Autoimmune Retinopathy AIR

Hi everyone - My name is Joe and I'm new to this very informative site I was diagnosed with AIR in July 2011. I am 55 yrs old and live in Los Angeles. I have been seeing Dr Rao since AIR was confirmed. Needless to say it is a terrible disease, and the treatments are all hopeful to get it under contr...