Iritis.org

Mike,

Thank you!
I was not if posting that would be appreciated.

Cheers,
-Deb

Ann, What type of Doctor is prescribing just Celcept? I have Lupus and through support groups have learned that you have to take control of your healthcare. Dr. Janet Davis (Uveitis specialist) at Bascom Palmer Eye Institute recommended IVIG and Rituxan. My Rheumatologist wanted to prescribe just Ce...

I have some good news to report! After 1 year on IVIG plus Rituxan plus 6 months on Cytoxan, we did another Casey Eye Institute anti retinal antibody test. My anti retinal antibodies decreased from 6 to only 1!!! What is interesting is the one that showed up is not one of the 6 that showed up last t...

Thought that I would give you an update on my treatments for Autoimmune Retinopathy. I have been on Rituxan for 6 months. I get 2 infusions 2 weeks apart every 6 months. I have been on IVIG for just short of a year. I started a 1 a month. In July 2013 when I started the Rituxan I started getting IVI...

Update: I had my 1st 2 Rutixan infusions in July and I receive IVIG infusions every 2 weeks for my Autoimmune Retinopathy. Last week I had my 1st eye check and Goldman Field test by a local doctor since starting Rutixan and increasing IVIG to every 2 weeks. One new blind spot in my right eye appeare...

Update: It took a solid week for me to recover from the 2nd Rituxan infusion. The dosing is 2 infusions 2 weeks apart, every 6 months. Now I am feeling better than I have in years. It has really helped with Lupus symptoms like joint pain and rashes and I have good energy! The insurance approved IVIG...

I had my 2nd Rituxan infusion on Monday 7/22. It knocks the wind out of your sails. I am starting to recover, but have been really sleepy since getting it. I had been on Benlysta infusions(for Lupus) for 2 years and a once a month IVIG infusions for the last 5 months. After 6 months my vision had go...

I found an abstract online that explains the results of a Pilot Clinical Trail for using Rituximab for the treatment of Autoimmune Retinopathy.

Program Number: 5928
http://www.arvo.org/webs/am2013/abstrac ... ns/525.pdf

All the best,
-Deb

Melinda, You mentioned that your husband did IVIG for 1 week last year. Did he get an infusion every day for a week? I am curious since I am receiving IVIG. Mine is a 2 hour infusion once a month. My doctor said that it stays in the body for about 2 weeks. That is why we are trying to get the insura...

Melinda, Will your husband be continuing with the Dr. H cock-tale and taking the IVIG in addition to it? I am taking Rituxan and we are sequencing IVIG. I have been sequencing monthly, but we are going to try and step it up a notch to twice a month - every 2 weeks. If the insurance will allow it. Al...

Hi everyone, I was diagnosed with Autoimmune Retinopathy in January of 2013 by Dr. Janet Davis. My Anti-Retinal Autoantibody test was done at the Casey Eye Institute. It came out like this: WB: POSITIVE for multiple anti-retinal autoantibodies against 34-kDa, 36-kDa GAPDH), 40-kDa (aldolase), 45-kDa...