Search found 9 matches

by refinnej30
Tue Nov 26, 2013 9:34 am
Forum: General Discussion
Topic: Organ Damage
Replies: 3
Views: 5877

Re: Organ Damage

Mike, Thanks for the input. I am very frustrated after 14 years of trying to figure out what is going on with no answers. I am very organized, I carry a binder with all my info, doctors finding and labs, but I find most doctors ignore it. Just want to get all my ducks in a row for when I see my doct...
by refinnej30
Wed Nov 20, 2013 4:02 pm
Forum: General Discussion
Topic: Organ Damage
Replies: 3
Views: 5877

Organ Damage

Hi Mike. I've been battling Uveitis since 1999. I tried mtx from 2004-2006 and discontinued due several infections. Until my last flare in March 2013 I used Pred Forte and a dilator. This time I also needed an injection under my eye. I saw Dr. Foster (I used to live in Cape Cod) and he suggested Cel...
by refinnej30
Fri Oct 11, 2013 2:00 pm
Forum: Related Conditions
Topic: Best Treatment
Replies: 1
Views: 10097

Best Treatment

Hello Mike. Just found out that I might have Ankylosing Spondylitis along with Uveitis, I am HLA B27+. Dr. Foster advised me to take Cellcept for the Uveitis, but wasn't sure what the recommended treatment is for AS? My Rheumy just told me that Cellcept wasn't the best for AS, but she is trying that...
by refinnej30
Sat Apr 27, 2013 6:08 am
Forum: General Discussion
Topic: Pruning
Replies: 4
Views: 7456

Re: Pruning

Thank you Mike. I had a Avastin injection a little over 2 weeks ago. I think my need to find info caused me to get overwhelmed. I'm currently in college and this has made school very difficult. I was seriously considering giving up school, which is almost unthinkable to me. I do have an local eye dr...
by refinnej30
Fri Apr 26, 2013 2:47 pm
Forum: General Discussion
Topic: Pruning
Replies: 4
Views: 7456

Pruning

I have questions regarding impressions I got with Dr. Foster. I would have asked him, but it took awhile to really grasp everything. I understand the treatment (Cellcept and Celebrex 2xs a day), but have questions that I thought of after my visit. It's not ideal but we are moving and he advised me t...
by refinnej30
Thu Apr 18, 2013 11:11 am
Forum: General Discussion
Topic: Can't remember name of med
Replies: 1
Views: 4029

Can't remember name of med

I saw Dr. Foster last week and he said I had a house fire (Iritis) in my eye due to nose surgery and stress/how my brain is wired. He told me we had 4 options stronger drops (than pred forte), eye injection, 2 days of iv steroids or oral steroids. I chose the eye injection. Been on Pred Forte hourly...
by refinnej30
Mon Apr 08, 2013 11:42 pm
Forum: General Discussion
Topic: Odd Flare
Replies: 3
Views: 5835

Re: Odd Flare

Put in for a referral with the military to see Dr. Foster and told them it was an emergency. Hope to see him no later than Thursday. I already know he's going to put me on a dmard and I guess I wanted to avoid it. :shock: I had 11 infections with Methotrexate in 16 months. I am now allergic to almos...
by refinnej30
Sun Apr 07, 2013 7:19 pm
Forum: General Discussion
Topic: Odd Flare
Replies: 3
Views: 5835

Odd Flare

First let me say I'm so thankful for you Mike. I'm having a very odd flare. I am HLA B27+ and for the most part have been quiet for the last few years. I've done immunosuppresant therapy and had to stop due to infections. I had turbinate reduction surgery March 7 2013 to open my nasal passageways. T...
by refinnej30
Mon May 14, 2012 6:37 am
Forum: Related Conditions
Topic: Related new issues?
Replies: 1
Views: 6733

Related new issues?

I was diagnosed with HLA-B27+ Iritis in 1999. I'd been flare free for almost 3 years and last month I had a bad flare. I had a flare due to Cipro and Allergy testing. At least I know why I flare now. It's now calm and I'm weaning off the meds. Normally when I'm on Pred Forte I only need a few hours ...