Search found 7 matches

by mrsgary
Sat Feb 20, 2010 11:34 am
Forum: General Discussion
Topic: Lynn, Welcome to the group!
Replies: 12
Views: 14194

Re: Lynn, Welcome to the group!

Lynn, the photophobia can be caused by some medicines and extreme doses of Vitamin A if you are taking it. Light got much more tolerable after I stopped taking Topamax and Vitamin A in mega doses. We are waiting to hear from Liz about how her appointment went this week at the University of Michigan....
by mrsgary
Mon Feb 01, 2010 1:08 pm
Forum: Related Conditions
Topic: Autoimmune Retinopathy AIR
Replies: 342
Views: 479844

Re: Autoimmune Retinopathy AIR

Are you a migraine sufferer? I took Topamax for about year and my primary said that that caused a good part of the light sensitivity. Nobody can say for sure if the Topamax didn't cause the entire problem but it will be interesting to follow all of these TV commercials to see if someday an attorney ...
by mrsgary
Wed Jan 20, 2010 4:08 pm
Forum: Related Conditions
Topic: Autoimmune Retinopathy AIR
Replies: 342
Views: 479844

Re: Autoimmune Retinopathy AIR

Are you driving? I do day-time but no night-time but it's been like that for awhile. Hate grocery store parking lots. Do your eyes burn sometimes like there's smoke in the area? Lots of questions I know, but as you say, nice to know somebodies in the same boat. There is another person that I have he...
by mrsgary
Tue Jan 19, 2010 3:36 pm
Forum: Related Conditions
Topic: Autoimmune Retinopathy AIR
Replies: 342
Views: 479844

Re: Autoimmune Retinopathy AIR

Liz I'm glad to hear things are holding their own. What does slight improvement constitute? What kind of work are you doing? Mine is very tiresome because it is computer oriented all day. Very few breaks. Were you included in Heckenlively's study or did you find him afterward? Going back to see my R...
by mrsgary
Thu Dec 31, 2009 12:41 pm
Forum: Related Conditions
Topic: Autoimmune Retinopathy AIR
Replies: 342
Views: 479844

Re: Autoimmune Retinopathy AIR

Liz, is there an update on your condition? I'm guessing you 've been to the University of Michigan. Have also seen your posting on Oprah.com. I'm delaying the medications as long as possible because of some of the side effects. Please let me know how you are. You are my barometer as to waht to do ne...
by mrsgary
Thu Jul 23, 2009 11:27 am
Forum: Related Conditions
Topic: Autoimmune Retinopathy AIR
Replies: 342
Views: 479844

Re: Autoimmune Retinopathy AIR

Liz, have seen your post from February. I am newly diagnosed with AIR and find only negative things about the "drug cocktail" How did your followup go in May and are you going to the Kellogg Eye Center in Michigan? Thank you and hope all is going well.
by mrsgary
Thu Jul 23, 2009 11:15 am
Forum: Introduce Yourself
Topic: Hello
Replies: 0
Views: 4165

Hello

new diagnosis of AIR and no drug regimen yet.
Have a great day.