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WOW! that is exciting Mary! When did you find the time to write a book? I just don't know how you do it all... Dell Hell...yes, I remember that...if you need advice on how to negotiate THEIR system, just ask me. The key word is "escelation". Always say you want to be escelated if you are n...

Mary, I SO know what you are going through - I went throug it for 18 years, and am STILL going through it. I have had every test in the book, including a bone scan for AS 15 years ago, Gallium scan for Sarcoid, 7 years ago, VEP for last 15 years, latest being last year, even a muscle biopsy of my th...

Hi Mary, I am so sorry you are experiencing these new symptoms and hope you can get some answers about what is going on with your eyes. You asked if anyone has had experience with evoked potentials, and I have had the test done about 4 times in my life, for my eyes, and other parts of my body. The o...

Hi Guys, I just want to apologise for my lack of participation lately - my vision has been changing quite dramatically since my optic neuritis, but seems to have stabalized, so new prism glasses have been ordered (I think I mentioned that, not so sure...). Anyway, writing in this little box with the...

Now that is the Sheila I know! I was getting pretty down myself reading the previous posts, I am also feeling out of sort, reverting back to what I now call ADA - ADD/ALZHEIMER's - I was talking to someone else who has almost the exact same symptoms, and they got better on th increased pred, but on ...

AHHHHHHHHHHHH! BUt rememeber Sheila, we have a very loooooooooooong Spring, and it will probably start next week, and not hit sumer until July and August, but who knows, we had the never ending summer last year, and the never ending winter this year, so it's all up for grabs... It's only about $40 f...

Hey Mikey - if you liked Monday, how did you like today (Tuesday)?? Man, I was out in the yard all day in just a Hoody! I coud actually put my hands in the dirt (I love doing that, have since I was a baby). Put out all the plants I have been keeping inside by the big windows hoping they would be gro...

Hi Renee, that is my favourite too - it is so Mindy...She really tries to understand every word you say to her, and I think does more than would have thought. She tends to tune out monotone talk, but was trained to respond to a "sing-song" type voice, and they would always say her name bef...

I agree with everyone's reply's Sheila, I was also going to say what Kat said about getting copies of your consultaions and bloodwork from your GP. Some of my Eye Guys write them right away and I walk away with my visit and they use terms that they never actaully say to me, but I usually know, but i...

Hi KAt! Great to see you here. I just finished uploaded my pics of Mindy and the two of is in various settings, onto my photo website called "EYZWIDESHUT" - it is a free site from Google and Picassa, so you can go and look at them anytime. The link is: http://picasaweb.google.com/EYZWIDESH...

Thanks Mike, you pretty well hit the nail on the head. I would like to add that it was gluacoma surgery doen by a specialist not familiar with uveitis patients, or just pure slopiness that allowed me to almost loose all the vision in my second eye that was treated with IMT from the start. Ihad 20/40...

Hi Guys, I am joining in the banter - finally back among the living and getting caught-up. I too know a few people who only have an anterior flare every few years, usually preceeded by extreme stess (one flares after her weddig). IF you can catch these early and treat agressively with drops, these p...

Sounds like you have been on quite the roller coaster ride - I hope your team comes up with some answers sooner rather than later and a treatment plan can be put into place. These diseases can be very tricky to get a firm diagnosis, the symptoms cross over to so many diseases, and for most there are...

Hi Theresa, My name is Cathy and I live in North Vancouver, B.C., but I also lived many years in the Toronto area (North York) and have been dealing with uveitis for about 12 years. For me the systemic disease either started or was detected first, a rare autoimmune disease that my uveitis specialist...

That is great news!! I am so glad you got in to see Dr. Samson - I have heard allot of good things about him. I find that when I am in the care of a true professional that I can trust, I worry far less about my eye care and always leave my appointments in a positive frame of mind no matter what they...