Search found 40 matches

by rtaunton
Fri Sep 25, 2009 8:43 am
Forum: Parents' Forum
Topic: Our 9 year old daughter has iritis
Replies: 7
Views: 8241

Re: Our 9 year old daughter has iritis

Rachelle, You are moving mountains girl! You will be getting your child on the right path very soon. As Mike mentioned, LoriQ is one of the moms over at the uosg.org site. If you post on the parents section she will see it and respond to you. She would be a good one to have in your corner. I have a ...
by rtaunton
Sun Sep 20, 2009 5:18 pm
Forum: Medical information, Drugs etc.
Topic: Cyclosporin and increased cholesterol levels
Replies: 9
Views: 6359

Re: Cyclosporin and increased cholesterol levels

I know that when my daughter was on it, that Dr. Foster told me to watch her cholesterol intake. I'm glad you already have Dr. Foster in the loop. You're right, not one recipe works well for any given person, but thank goodness there are a lot to choose from.

Hang in there,
Renee'
by rtaunton
Fri Sep 18, 2009 9:09 pm
Forum: Parents' Forum
Topic: Karen, Welcome to the group
Replies: 1
Views: 4534

Re: Karen, Welcome to the group

Hi Karen, I hope your daughter can be seen by one of the doctors Mike has suggested. That really is the best way to fight uveitis, by finding an ocular immunologist or uveitis specialist who knows how to beat this monster out. My daughter was diagnosed in 2002, and she will be 14 next month. She has...
by rtaunton
Tue Sep 15, 2009 7:26 pm
Forum: Parents' Forum
Topic: Tracey, Welcome to the group
Replies: 4
Views: 5947

Re: Tracey, Welcome to the group

Tracey, I don't know where your intro is, but I also would like to welcome you to the group....

Renee' -
by rtaunton
Tue Sep 15, 2009 7:25 pm
Forum: Parents' Forum
Topic: Our 9 year old daughter has iritis
Replies: 7
Views: 8241

Re: Our 9 year old daughter has iritis

Hi Rachelle, I hope you got in touch with the Dr. that Mike told you about. There is even an uveitis support group based out of Canada that Saletta (another support group parent) helped to put online. I'm not sure if Mike gave you that link, but if you can't find it let us know. Uveitis can be so tr...
by rtaunton
Fri Apr 03, 2009 4:43 pm
Forum: Parents' Forum
Topic: INTRODUCE YOURSELF
Replies: 22
Views: 21087

Re: INTRODUCE YOURSELF

Hi Sandy, You and your daughter have been through the ringer. When it comes to fighting the insurance, I would definitely ask Frances to help you. It can be so complicated if you don't have any help. The office at MERSI have helped so many in this regard. My daughter would love to see more teenagers...
by rtaunton
Sun Feb 22, 2009 5:23 pm
Forum: Parents' Forum
Topic: INTRODUCE YOURSELF
Replies: 22
Views: 21087

Re: INTRODUCE YOURSELF

Hi and welcome, The steroids could be making her cheeks red, as well as upsetting her tummy. It will help to put out the inflammation in the eyes, though. March 3rd, is just around the corner, but if in your gut you feel she needs to be looked at sooner, call the office and ask them to bump it up. I...
by rtaunton
Sat Dec 20, 2008 8:17 pm
Forum: General Discussion
Topic: chronic uveitis and JRA and psoriasis
Replies: 53
Views: 25830

Re: chronic uveitis and JRA and psoriasis

There are options out there. Yes, Ivig was what got my daughter into durable remission. Cellcept with cyclosporin got her eyes quiet, and so did chlorambucil, but she couldn't stay on them due to pnuemonia. Ivig actually helped her to stay healthy. It is a last resort med, and also a major pain in t...
by rtaunton
Thu Dec 11, 2008 3:30 pm
Forum: General Discussion
Topic: chronic uveitis and JRA and psoriasis
Replies: 53
Views: 25830

Re: chronic uveitis and JRA and psoriasis

The meds that she tried and failed were: Methotrexate, combo Methotrexate and cyclosporin, Cellcept and cyclosporin, Chlorambucil and finally IvIg. After failing chlorambucil, Dr. Foster gave 3 choices of meds which were presented to my insurance; Zenepax, Remicade and ivig. I was going to have a fi...
by rtaunton
Thu Dec 11, 2008 8:54 am
Forum: General Discussion
Topic: chronic uveitis and JRA and psoriasis
Replies: 53
Views: 25830

Re: chronic uveitis and JRA and psoriasis

Hi again, Kevin helped me sort out my log in issues. Dr. Foster will work with any Dr. All he asks is that the patient will travel to see him so that he can diagnose properly. When we went to him in 2004 for an evaluation the appointment took almost 5 hours. At the end of the appointment he told me ...
by rtaunton
Tue Sep 23, 2008 11:23 am
Forum: Parents' Forum
Topic: eye floaters
Replies: 8
Views: 13150

Hi Miami Mom

Sounds like more than just iritis to me, too. My daughter used to name her floaters. I would be driving down the road, and my then 6 year old would say, They're baaaaaaaaack! lol

You are lucky to have two true specialists to choose from. If I missed it, I'm sorry, but how old is your child?
by rtaunton
Thu Aug 28, 2008 10:22 pm
Forum: Parents' Forum
Topic: Accessing School Services, children with disabilities
Replies: 4
Views: 6516

; )

Do I get to go, too? HA, is about what would come out of my daughters mouth! No, although her brothers both asked her if they could go as chaperones LOL She is going to have a great time with the 4 other kids, and their chaperones. What an experience. As far as getting services, uveitis is not somet...
by rtaunton
Wed Aug 27, 2008 9:47 am
Forum: General Discussion
Topic: Happy Birthday to Mike!
Replies: 7
Views: 3453

Happy Birthday to Mike!

Please help me to sing (internet wise) to Mike. I've already sang to you dear, so I will simply say.......Happy Birthday! Thank you for helping so many people Mike. You are one of those living angels.....
by rtaunton
Wed Aug 27, 2008 9:45 am
Forum: Parents' Forum
Topic: Accessing School Services, children with disabilities
Replies: 4
Views: 6516

; )

One aspect of a IEP or 504 that has helped my daughter so much is having a vision therapist follow her through school. She has two different specialists, for the last 4 years. The first year, it was tough. We had to educate them about uveitis. The whole scenario of, she looks fine, she doesn't need ...
by rtaunton
Thu May 08, 2008 10:26 pm
Forum: Announcements
Topic: Iritis, an introduction
Replies: 67
Views: 208929

Hi Sandi

I know what it feels like to be fed up, and have the feeling in your gut that the treatment is just not aggressive enough. I back up Mike in his suggestion of doctors that he gave you, it really is key to putting the uveitis in remission. It does get better. It is a heck of a journey as you are find...